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Service summary

Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
Contact
Website: www.nystagmusnetwork.org
Email: info@nystagmusnet.org
Tel: 01427 718093
Address: 70 Hyde Vale London SE10 8HP
Social media
Linkedin: Linkedin.com/nystagmusnetwork
Twitter: Twitter.com/NystagmusUK
Facebook: Facebook.com/NystagmusNetwork
Instagram: Instagram/NystagmusNetwork
Nystagmus Awareness Day - 20 June

Service provider

Nystagmus Network

Client Groups Served

  • Children and Young People
  • Adult Working Age
  • Older Person
  • Parent / Carer
  • SEND Local Offer

Costs

  • Membership is available however not a pre requirement to access free support and information

Accessibility

Physical Environment Accessibility

Are your premises accessible?
N/A
Further details about your premises' accessibility

We operate a virtual service and have no physical premises however we have website support and information service and telephone helpline available,

Is there accessible parking on site?

Not applicable

Other Accessibility

Could you provide a BSL interpreter?
No
You you cater for religious/cultural needs?
N/A
Is a referral required to access your service?
No

Organisation Details

Organisation

Address

Contact Details

Images, Files and Documents

File Attachments