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Children's Continuing Care (CCC)

Some children and young people under the age of 18 may have very complex health needs. These may be the result of congenital conditions, long-term or life-limiting or life-threatening conditions, disability, or the after-effects of serious illness or injury. Their needs may be so complex, that they cannot be met by the services which are routinely available from GP practices, hospitals or in the community.

Continuing care is not needed by children or young people whose needs can be met appropriately through existing universal or specialist services through a case management approach.

A children and young people’s health assessor and nurse specialist will assess a child’s eligibility for CCC funding and will arrange a bespoke package of care to meet the complex health needs of the child.

Where a child or young person is eligible for CCC they are able to receive their bespoke package of care via a personal health budget (PHB), commissioned complex health care provider and through jointly commissioned packages with Local Authorities.

Continuing care should be part of a wider package of care, agreed and delivered in collaboration between health, education and social care.

The functions of the Children's Continuing Care team are to implement:

  • Initial screening of referrals
  • Coordinate assessment and information gathering
  • Coordinate and chair Decision Support Tool (DST) meeting
  • Complete DST paperwork to determine eligibility or not and to feedback to referrer and family
  • Promote PHB’s and facilitate as required (specific to locality area)
  • Support the family to secure a package of care to meet the child’s assessed needs
  • Present proposed package in a forum to seek funding approval by the LA and ICB
  • Review new packages of care after 3 months
  • Review eligibility for CCC annually
  • Monitor and alter a care package if appropriate and to re -present in the forum for agreement
  • Provide Fast Track support for Children and Young People at the end of their lives and to implement a supportive package

In Redcar & Cleveland this service is provided by NHS North of England Commissioning Support Unit (NECS) on behalf of NHS North East & North Cumbria Integrated Care Board (ICB).

Further details can be found by emailing necsu.childrenscontinuingcare@nhs.net

More detailed information can be found on the National Framework at:

Children and young people’s continuing care national framework - GOV.UK (www.gov.uk)